Friday, March 4, 2011

Rare Disease Day

Rare Disease Day is recognized on February 28. For those of us with a rare disease, every day is rare disease day. I appreciate the many unified voices of advocacy, along with the year-long efforts of Eurodis and NORD, to bring awareness to this 'rare' community that collectively affects 1 out of 10 individuals.

I am always touched and inspired reading the stories of others with a different diagnosis, but who share the same struggles as me with medical and social understanding...just living.

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