"According to your medical checkup, you are dead." ~A doctor to René Desmaison after he was rescued off the north face of Grandes Jorasses, having spent 342 hours without food or water.
Yesterday I received my medical update status to turn in for my continued life insurance coverage. (I lose value as I age.) In reading about my condition, there were only three lines to list the diagnostic codes for my ails, so having insulin-dependent diabetes was mentioned in another section. The three lines were filled with my other chronic diagnoses.
In reading the severity of my symptoms, limitations, and bleak prognosis for recovery, I am thankful I am a medical cynic with faith, hope, and optimism. Just to be sure...
I ordered flowers for my memorial service before getting the specifics of time and place. I scoured the online obituaries and did not find anything on me. Finally, I checked my pulse and found one. I am debating about the flowers. Every woman loves to get flowers.
May I live in peace.
Copyright © 2011
Sharing my life experiences challenged with Stiff Person Syndrome and diabetes, two chronic and disabling disorders; living forward with determination and humor, flying with wings of hope..."in spite of."
Friday, June 24, 2011
A Month of Memories
“Life gives us brief moments with another...but sometimes in those brief moment we get memories that last a life time...” ~Unknown
I made it! My first solo road trip to surprise Mom for Mother's Day. May, 2011 - a month of memories.
Hanging out at Mom's for a couple of weeks, we talked, watched Dancing With The Stars, talked, shopped, ate out, talked, lounged, took walks, worked in Mom's doctor appointments...and talked--serious conversations, vents, reminiscing, woman-to-woman sharing, & laughing.
Not restrained by time, we went on an impromptu road trip. Driving at whim, we stopped frequently, enjoyed the scenery, traveled through the Blue Ridge Mountains, visited family, had moments of companionable silence, lost in thought to the hum of tires on the freeway and an occasional CD. Without an itinerary, we shared a motel room at different stops as desired.
Typical women, we both over-packed clothing, but with our conjoined medical supplies/medications/equipment, I thought a white pharmaceutical delivery van would have been a more suitable mode of transportation. Each stop required getting a luggage carrier to load with an oxygen machine, diabetic supplies, our individual rolling totes with prescriptions, a breathalyzer machine, cooler with insulin, along with a change of clothes and pajamas--Just to haul it all out and repack the car the next day.
Without jumping on the beds, we had slumber parties in the motel rooms. I resorted to little girl mode, crawling into bed with Mom one morning to snuggle. The continental breakfasts! We stuffed ourselves on eggs, biscuits and gravy, pastries, and juice out of nutritional guilt.
We enjoyed more shopping, eating out, sharing dessert, (Bob Evan's strawberry pie!), lounging in pajamas until noon with coffee and more talking, movies, mother/daughter pedicures, Memorial Day at the ocean, and a boat ride.
Mom has a fear of water. She would have learned how to swim if getting in the pool wasn't a necessity. "I am taking you for a boat ride, " I informed her with my childlike orneriness and anticipation.
"On the water?" she responded in dismay.
I had to laugh. "No, Mom. I am going to take you to the mall and see what a quarter will buy. I will wave as you go around." After I had my fun, I promised her she would enjoy it.
An afternoon meandering at the Jacksonville Landing, a lunch of chicken wings and another dessert, we took the water taxi. Mom really enjoyed it. I enjoyed her.
We had an amazing month of being two girls on an "Excellent Adventure." When I started my solo drive, it was with the intention of spending a quality and quantity of time with Mom, just the two of us. Living the experience was better than imagining it.
Until next time...I have been hearing about a zip line over a pool of alligators?
Make memories with those you love, don't miss the boat.
Copyright © 2011
Saturday, June 18, 2011
Divine Driving - Against All Odds
"There is great meaning in life for those who are willing to journey."
~Jim England
Winter was bitter, harsh, and lonely morphing into a gray, damp, chilly afterthought. No spring for her. Sharing morning marathon talks over coffee by phone, my mom and I are very close but separated by 900 miles. The long bleak months of home confinement, coupled with some newly diagnosed health issues, were taking a toll on her spirit. I heard the dejection in her voice.
I was planning a summer trip, but loving concern kept niggling at me to plan an earlier surprise visit. Not a problem...just a budget buster, the numerous complications of my physical conditions, and fear. In recent life assessment, one of my unrecognized dreams/goals was to take a solo road trip, just me, a big girl. Scary stuff considering my physical limitations, diabetic monitoring, and syndrome triggers.
Nine hundred miles is not a road trip, but a sojourn. The more I thought about it, the more excited I became. Mother's Day was approaching. A surprise gift--a hand-delivered card. Love often overrides sound judgment. (Thankfully.)
I decided to set out the Friday before Mother's Day, allowing a two-day drive with a motel layover. MapQuest yielded a written map with instructions. One of my disabilities is being severely directionally challenged. A Garmin was a previous gift to help with local navigation.
On Monday of my countdown week, I had an infusion. This infusion had an unusually long and nasty recovery--three days of headache, fatigue, mild nausea, and aches. I started to doubt the wisdom of my plans. Thursday dawned with an improved physical outlook, reigniting my initial excitement.
Packing. Clothing, cosmetics, and accessories are minor. My life support: medications, insulin pump supplies, backup pump, glucose monitor, test strips, and gait aids were carefully laid out, packed, unpacked, rechecked, and triple-checked along with remembering necessary emergency contact information.
I tried to remain calm. Excitement or angst, of which I had an abundance of both, aggravate or create syndrome stiffness, pain, and spasmodic attacks. Breathe, pray, breathe, pray.
After a restless night, I awoke and loaded the car. (The inventor of wheeled luggage has my forever gratitude...ease and surrogate walker.) A mix of Cd's, snacks, bottled water, and a cooler for my insulin was the last to go into the car. I planned my departure for late morning to avoid rush hour traffic. SPS does not handle any sort of rush well.
I stopped to get a coffee to compensate for my lack of sleep the night before. The skies opened to a flooding deluge of rain...my worst fear as a passenger in a car, let alone driving on an interstate filled with semi-trucks.
I closed my eyes and said a simple prayer, "God, I need you to be the driver. I cannot do it without you." A settling calm came over me.
Most of Friday was driving through torrents of rain. Brain-dead by rush hour that evening, I finally exited from the standstill bumper-to-bumper 5 mph traffic to check into the first-in-view motel. With my hiking pole and roll-along carry-on, I negotiated a killer deal with the motel clerk.
Laying on the king-sized bed of my ritzy suite, I was heady with the independence of the day's accomplishment..."normal"...that delicious and elusive word. I called my supportive loved ones, clued in on my surprise, to update on the safety of my status. A hot shower and bed beckoned to rest my scratchy eyes, elevate my tingling, burning right arm, and stretch my aching back and stiff neck.
Savoring the continental breakfast, as a first-time solo traveler, was a new and exciting experience for me. Resetting my Garmin traveling companion, I set out for the long day's travel with seeing Mom as my prize at the end of the day. Giggles of anticipation erupted from me all day.
I pulled up that evening as Mom was grilling Bratwurst. I told her, "I thought I would save the postage for your Mother's Day card and just bring it to you." Happiness that shatters the heart was felt in our hug.
It was one of the most amazing experiences of my adult life--the euphoria of being with Mom and overcoming 20+ years of SPS not letting me, or others telling me I can't, for me to make my first solo road trip--at the age of 53, driving 900 miles. But I was not the driver.
"The feeling remains that God is on the journey, too." ~Teresa Of Avila
Copyright © 2011
Labels:
faith,
overcoming,
spiritual,
Stiff Person Syndrome; family,
traveling
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